We can not thank you enough for all your faithful prayers for our family. God has worked through you in our lives in tremendous ways. I'm now desperately asking for prayers for some dear family friends.
I'll let you read most of the story on their website, but I'll summarize for you a bit.
Tim and Elaine Dulaney are dear friends of ours. They attend out church and work in the youth group with us. They are a wonderful family, and we're so thankful for them. They have three boys. The oldest is Benjamin. When Ben was around 3 years old they found out that he has a degenerative, fatal genetic disorder called Sanfillipo Syndrome, or MPS IIIA. It has been difficult to see the disorder's effects on Benjamin as he grows, but we all love him dearly and are so thankful for God putting him in our lives. Their second son is Noah. He is the same age as Jorja and was blessed to not have the disorder himself. He is the typical four year old boy. And now comes Owen.
Owen is 4 months old and through an amnio during pregnancy Elaine found out Owen also has Sanfillipo. The specialist they were seeing offered them the hope of a stem cell treatment to delay the onset of the symptoms of the disorder and give them more time with him before the disorder took over, but there was no proof that it would work, and would possibly kill him. At the time the decided against it. Recently the specialist brought up a similar treatment that is still experimental, but a much better option. After much prayer Tim and Elaine decided to allow Owen to undergo this procedure. The procedure will take about six months to complete. The details of what the procedure requires are on their website, but in short, it will take 8 days of chemotherapy, a bone marrow transplant, and isolation as they evaluate how his body is receiving the transplant and he recovers.
Please pray for Owen, Tim and Elaine, and their family as they help with Ben and Noah. Please go to their blog to read all that is happening. Owen started chemo yesterday, December 11.
This family could desperately use your prayers, and if you feel led, your finances to help pay for this procedure and all the additional costs incurred through it. Check their blog for updates and information on how to help them financially.
Thank you so much! I trust you will pray diligently for this sweet sweet baby and his family. I can't wait to see how God works mightily through this entire situation.
Please visit their blog and let them know you're praying for them.
just click on An Opportunity for Owen
if that doesn't work go to:
www.anoportunity4owen.moonfruit.com
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